Category Archives: Stories of Hope

Stories

Dubai Golf stands out as a leader in philanthropy

The game of golf has a long history of being a leader in philanthropic contributions and giving to charity is an integral part of the sport. The sport can even be recognised as the leader in charitable giving around the world setting the benchmark for incorporating sports and philanthropy.

The UAE hosts some of the most important tournaments in the world and we have witnessed amazing support from our local golf partners like Dubai Golf. Dubai Golf holds several events and tournaments at Dubai Creek Golf and Yacht Club and Emirates Golf Club to support Al Jalila Foundation throughout the year. These events range from local club members getting together to support their dedicated cause to world class events featuring the stars of the sport.

These prestigious golf events have not only led to great fundraising but have opened many avenues for other partnerships. Massive, televised events have shown our logo to the world as world famous golfers wear pink in support of breast cancer research in the UAE and beyond. We have even had several star professional golfers visit Al Jalila foundation to donate a portion of their winnings to charity and have their name engraved on Bassmat Rashid Bin Saeed donor recognition wall.

We are grateful and proud of our partnership with Dubai Golf who, since 2015, have raised an astonishing AED 800,000 for Al Jalila Foundation. We look forward to many more years of working together for the greater good of the community.

Through collaboration we all succeed

At Al Jalila Foundation we know that research has the power to advance medical breakthroughs that could save millions of lives and change the fabric of science as we know it. We also know that this goal will not be achieved alone and believe in the power and strength of our partnerships. Mohammed Bin Rashid Medical Research Institute, an initiative of Al Jalila Foundation, partnered with Mohammed Bin Rashid University of Medicine and Health Sciences (MBRU) to advance biomedical research in the UAE.

Al Jalila Foundation provides AED 8 million of funding annually to support MBRU research activities which fosters greater unity among the research community and creates more opportunities for faculty and students to further their education and explore ways to support each other’s research objectives. A number of joint research studies have already been published in prestigious global research papers.

Scientific research is a critical resource for discovering new ways to diagnose and treat diseases affecting mankind. Al Jalila Foundation and MBRU share a commitment to advance discovery on therapies and treatment protocols that will benefit the UAE population. This partnership combines the strengths of our institutions and supports the mission of Dubai Academic Health Corporation to advance health for humanity. It inspires collaborative research and enhances the quality of both entities’ research programs to contribute to the UAE’s thriving medical research ecosystem.

Testament to Dubai’s status as an emerging global hub for scientific research and innovation, Stanford University recognised nine faculty members from MBRU in its latest rankings of the world’s top 2% scientists. Click here to read more.

Cancer survivor pays tribute to ‘The Pink Couch’ at Majlis Al Amal

Pier Shilliday found small lumps under her arm and on her bikini line during her husband’s 40th birthday celebrations and was diagnosed with Non-Hodgkin’s Lymphoma on 30 October 2021.

On 16 November 2021 Pier started her treatment which included chemotherapy and radiation. Pier says “chemo was tough” but her biggest concern was explaining the diagnosis to her 5-year-old daughter and how she would react when “mummy lost her hair”. Children are resilient and Pier and her husband tried to include April as much as possible in the most age-appropriate way to make it less “scary” – when her husband shaved her hair, April was part of it.

Pier’s positivity got her through the tough days and as life slowed down so that she could focus on her health, Pier pursued art. It was a fun activity to do with her daughter and her creativity flourished. Pier found solace in art and it was the beginning of her journey as an artist.

When Pier visited Majlis Al Amal, she did so with some hesitation. “I am in tears thinking about that first day I walked into Majlis Al Amal, how I felt its immediate calmness, and the warm welcome I received from everyone who was there that day. Since then, it has become my sanctuary, where I’ve met wonderful, positive women, and attended various activities, some of which I would never have contemplated before being diagnosed. I even encapsulated its spirit by doing a painting of the pink couch, where I have seen women consoling each other, inspiring each other, organising activities and outings with each other, even having meals or naps! Majlis Al Amal is truly a place to escape and be with women who have been through a similar journey to yourself. And that is a big comfort.”

Pier is the artist behind ‘The Pink Couch’ a beautiful tribute to Majlis Al Amal and the community of cancer warriors that have been a shoulder to lean on when life with cancer gets too much to bear. Pier recently had the honour of sharing her art notebook with Her Highness Sheikha Latifa bint Mohammed bin Rashid Al Maktoum, Chairperson of the Dubai Culture and Arts Authority (Dubai Culture), during her visit to the cancer drop-in centre. “It was an unforgettable experience, I never imagined that my cancer journey would lead me to this incredible moment” Pier exclaimed.

If you are a cancer patient or survivor, or know anyone that is, please join the Majlis Al Amal Facebook Group to connect with an inspiring community of hope.

Swaba receives the precious gift of hearing

Imagine for a minute that you could not hear the birds singing, the leaves fluttering in the wind, and the laughter of children playing in the park. Imagine a world without sound. Now, imagine a parent who has just been told that their child cannot hear. Despair turns to hope when they learn of the cochlear implant – a surgically implanted electronic device that restores hearing.  However, for many families, the cochlear implant is out of reach as it is an expensive procedure that requires extensive post-operative speech therapy and rehabilitation.

At the heart of our A’awen program is our mission to help improve the lives of patients. With A’awen, there is always hope.

When Swaba was born, her parents were devastated to learn that she could not hear. “It was heartbreaking. The doctor confirmed that she could not hear anything and we were told that her development would be slow,” says Raseena, Swaba’s mother.

Early intervention improves speech and hearing outcomes. It is crucial that children with hearing loss are treated as early as possible. Swaba was eligible for a cochlear implant with all the costs covered by Al Jalila Foundation.

Since the cochlear implant surgery and the activation 3-year-old Swaba has become very inquisitive;  she is imitating sounds and can already say “mama” and “baba” much to her parents’ delight. When Swaba heard for the first time her parents were overwhelmed with joy, and so much hope! In that moment, the sweet little girl’s life was changed forever. Swaba received a precious, life-transforming gift: the gift of hearing. She still has a long road to recovery but the path ahead is bright and full of hope.

Click here to watch Swaba’s video.

Biochip technology shows potential for improved diagnostics

Globally, diabetes is estimated to affect 420 million adults. Studies show that the prevalence of diabetes in the UAE is estimated to affect a quarter of the local population.

Hematological (blood) disorders that occur in diabetes patients are found to put them at a higher risk for developing atherosclerotic coronary and peripheral arterial disease. Therefore, developing new technologies that offer alternative approaches to understand disease progression is of high importance for assessing risks and providing improved treatment in the future.

Al Jalila Foundation research grant recipient, Professor Mohammad Qasaimeh from New York University Abu Dhabi, aims to tackle this problem by developing biochip technology for monitoring and diagnosing diabetes through exploring the mechanical properties of red blood cells (RBCs). The new technology was tested with patients’ blood samples in collaboration with the Cleveland Clinic Abu Dhabi.

The biochip, developed with technologies used for manufacturing transistors and electronic devices such as phones and computers, utilises a tiny blood drop to assess the stretchability of red blood cells at the single cell resolution. RBCs were stretched by means of controlled electrical fields; a microscale phenomenon called electrodeformation. The experiments looked at stretching RBCs from individuals with Type 2 Diabetes (T2DM) and compared the results to those RBCs from healthy donors.

Interestingly, RBCs from T2DM samples were easily distinguished from healthy ones as they are shown to be stiffer and less stretchy in comparison to RBCs from healthy subjects. By looking at the stretchability of RBCs, the biochip was shown to rapidly identify T2DM cells with 90% accuracy, demonstrating its potential as reliable diagnostic tool for T2DM, as well as a high throughput technique for evaluating the biomechanical properties of cells obtained from clinical samples.

Ghala and her mother ‘share happiness’ everyday

Due to severe complications which caused atrophy in the brain cells at the time of her birth, Ghala, now 15-years-old had developed an intellectual disability which affects her speech.

Initially Ghala’s mother, Suhad, had concerns if Ghala could live a normal life and have access to all the services available to other children. Suhad took every opportunity to educate herself on how to work with her daughter’s strengths so she could live a full life. Thanks to her mother’s guidance and nurturing, Ghala was included into mainstream school to learn with her peers where she acquired many skills and developed a passion swimming. Suhad’s motto is “We will share happiness together.”

As Ghala grew, Suhad felt she needed to further expand her knowledge in the field of special education. In 2019 she was given the opportunity to enrol in Al Jalila Foundation’s Ta’alouf Parents Training Program which equips parents with the skills to empower their children of determination. Suhad absorbed so much knowledge and developed strong skills from the program which she put to use right away.

The program helped me so much with a variety of topics particularly the issue of puberty and how to prepare my daughter for this phase. I do not have enough words to thank Al Jalila Foundation for empowering me with greater understanding to support my amazing daughter and for developing my abilities and experience to work with people of determination.”

Aadvika is energetic and happy once again

4-year-old Aadvika’s parents became concerned when they saw her behaviour change. Their once bubbly and energetic girl no longer enjoyed socialising or playing with other children, she was tired all the time and did not have any energy.

Upon further medical examinations her parents were devasted to hear that their first child had been diagnosed with B-cell acute lymphoblastic leukaemia.

In addition to the shocking news Aadvika’s parents were overwhelmed with the cost of the life-saving treatment desperately needed for their daughter. Their plight for help came to the attention of Al Jalila Foundation and a special campaign was placed on the patient crowdfunding platform A’awen Giving. Much to the family’s delight the community were there to support young Aadvika with the full amount needed for her treatment was raised in a short time.

Aadvika’s parents were overjoyed, “It was heart-breaking to see Aadvika suffer. We felt so helpless. Now we feel so supported from our amazing community who are always by our side and have helped us get our precious daughter the treatment she needs. Now Aadvika is once again our athletic and social girl who loves to play with her little sister.”

Al Jalila Foundation held a Superhero Day as part of Childhood Cancer Awareness Month for the children who received support through the A’awen patient treatment program. We were delighted to see Aadvika so eager to take part in all the fun activities throughout the day. She truly has blossomed into a talkative, active and happy young girl.

Uncovering mechanisms to inhibit cancer cell growth

According to the World Health Organization, cancer is the second leading cause of death globally with about 1 in 6 deaths due to cancer. The main reason why it is so lethal is that cancer cells spread from their primary growth site to different body organs, a process known as metastasis. This process is intricately regulated by tumor-intrinsic and host-specific factors.

Al Jalila Foundation research grant recipient, Professor Basel Al-Ramadi from United Arab Emirates University, is studying novel ways by which cancer metastasis can be controlled and prevented. Professor Al-Ramadi and his team have been investigating the possibility of using a class of drugs, known an endothelin receptor antagonists (ERA), to stem the ability of cancer cells to spread. If successful, this research could translate to repurposing these drugs, which are normally used to regulate blood pressure, to fight cancer.

As proof of concept of their approach, the team tested ERA in a preclinical model of triple-negative breast cancer (TNBC), one of the most intractable and most difficult-to-treat breast cancer types. Breast cancer tends to spread to the bones, liver, lungs, chest wall and brain. In collaboration with colleagues in Germany, the study has so far demonstrated that ERA can in fact inhibit the metastasis of TNBC cells to vital organs such as the liver and lungs. The investigation is now focused at uncovering the precise mechanisms through which ERA can inhibit cancer metastasis, which is necessary before these drugs can be utilized in the clinic.

To learn more about this ongoing research study, please click here.

Benefit Cosmetics raises the bar of corporate giving

At Al Jalila Foundation our partnerships are integral to our mission to transform lives. Benefit Cosmetics is one of these valued partners who have held a number of fundraising campaigns to support our healthcare programs.

Globally Benefit, through the Bold is Beautiful program, is dedicated to supporting charities that empower women and girls through education and mentorship, access to wellness and economic self-sufficiency.

Over the past 4 years in the UAE, Benefit has chosen Al Jalila Foundation as their local charity partner and dedicated their CSR initiatives towards funding medical research and supporting breast cancer treatment and support for survivors.

Every year Benefit dedicates a product or a service to be a part of the Bold is Beautiful campaign where the proceeds from the sales are donated to Al Jalila Foundation. Since 2019, Benefit has raised an astonishing AED 610,000 to transform women’s lives in the UAE.

In addition to fundraising, Benefit always comes through with special treats, pampering sessions and goody bags for the wonderful breast cancer survivors who make up the Brest Friends support group and Majlis Al Amal community.

Benefit is a shining example of positive corporate culture where ‘giving back’ is a core value. We are proud of our continued partnership and inspired by their dedication as a global united team making a difference to the lives of women and girls around the world.

Teacher’s classroom is transformed through Ta’alouf training

As the flagship program, the Ta’alouf Training program has a special place in the heart of Al Jalila Foundation. Ta’alouf focuses on empowering teachers and parents of children of determination to nurture their abilities so they can achieve their full potential.

Teachers across the UAE have experienced major transformation in their classrooms thanks to their participation in the Ta’alouf Teachers Training program.

Ruqaya Al Gburi from Dubai National School in Al Barsha was part of the 7th Cohort of Ta’alouf Teachers Training, and she is the first to recommend the program to other teachers who are working to embrace inclusivity to support all the children in their classrooms.

“I look back at my time during the Ta’alouf course and can clearly see all of the amazing strategies and skills that I am now equipped with because of the course! It has shifted my mind when teaching students of determination. I highly recommend the course for Special Education Needs and Disability (SEND) teachers.”

To date, in partnership with Zayed University, we are proud to have seen 548 teachers who have grasped the invaluable skills and translated their knowledge to gifted children who have gone on to be creative, empowered and confident young people.

Nothing makes us prouder than when we see these children blossoming and taking every bite out of life and living their dreams.