Category Archives: Stories of Hope

Stories

Adam receives life-saving kidney transplant

Adam was diagnosed with renal dysplasia after birth which led to atrophy in both kidneys and severe deficiency in renal functions. He underwent dialysis for five years at his home in Ras Al Khaimah, before his condition deteriorated. At this point, his family took him to Al Jalila Children’s Specialty Hospital where Adam received hemodialysis with up to five hours of treatment three to four times a week.

The need for a kidney transplant was evident and in July 2019 his parents’ prayers were answered, and thanks to a kidney donor young Adam underwent the successful surgical procedure. The operation was conducted in cooperation with the Mohammed Bin Rashid University for Medicine and Health Sciences (MBRU) and was supported by Al Jalila Foundation.

Adam’s father expressed “It is a dream come true and with God’s grace that Adam is here with us today. Thank you to the incredible medical team and the generosity of the foundation.”

Al Jalila Foundation is dedicated to investing in medical research as it is only through advances in medicine that patients like Adam can receive life-saving treatment. With the support of donors we are able to sponsor pioneering treatment and alleviate some of the financial burden so that patients can focus on regaining their health.

Read about Adam’s reunion with his donor’s family here.

Improving women’s health and happiness

According to World Health Organization depression affects 350 million people worldwide and is a leading cause of disability, affecting more women than men.

In the Arab world, it is estimated that 17.7 percent of the population suffers from depression. With these alarming statistics, mental health is a top priority on the UAE National Agenda and a focus for Al Jalila Foundation research.

One Al Jalila Foundation funded research project, led by Dr Wegdan Bani Issa from University of Sharjah, is an in-depth population-based study among healthy adult women living in the UAE. This research studies the relationship between stress levels, sleep quality, physical activity and dietary habits.

Mental health is related to mental and psychological well-being. It affects how we handle stress, relate to others, and make choices. Women are at great risk for increased stress levels due to hormonal differences and pressure related to engaging in multiple roles in life.

Research like Dr Wegdan’s takes us a step closer to understanding how a woman’s stress relates to her lifestyle choices and will help develop evidence-based interventions geared toward improving her mental health, happiness level and productivity.

Pursuing a career to save lives

Growing up in an underprivileged community, Farah Ennab was inspired to pursue medicine as a profession to make a difference in people’s lives.

In 2016, based on excellent academic achievements, Farah was awarded an Al Jalila Foundation scholarship to follow her dream. Through the scholarship, Farah became the first person in her family to attend medical school and incidentally, was one of the first students enrolled in the Bachelor of Medicine and Bachelor of Surgery (MBBS) program at Mohammed Bin Rashid University of Medicine and Health Sciences (MBRU).

“Thanks to Al Jalila Foundation I have embarked on a journey of a lifetime. The scholarship has allowed me to explore the field of medicine and I am in awe of the diversity, complexity, and humanity that stems from such a noble profession. To have the trust of patients and the opportunity to change lives on a daily basis is an absolute privilege.”

Now in her fourth year, Farah is going through clinical rotations at various hospitals and was recently accepted as a student member of the American College of Surgeons. Upon graduation in 2022 Farah will be among the first MBBS graduates from MBRU and hopes to pursue a surgical specialty.

Running toward a life of freedom

Mohammed was diagnosed with Blount’s disease at a young age, a growth disorder characterised by lower limb deformity that slowly worsens over time. By the age of 11, the pain and deformity had become so severe that Mohammed was no longer able to stand, much less walk or play with his siblings causing a great deal of psychological distress along with the physical.

Surgery was needed to get Mohammed back on his feet; however, the solution seemed far out of reach for his mother who was raising three children alone. Desperate to improve his quality of life, Mohammed’s mother sought out help and was directed to Al Jalila Foundation who sponsored the corrective surgery at Al Jalila Children’s Specialty Hospital.

“It is with great joy that I share my gratitude to the incredible doctors at Al Jalila Children’s and the team at Al Jalila Foundation for their compassion. I cannot describe my happiness for the success of Mohammed’s operation and to be supported at a time of need.”

Since his operation in July, Mohammed is unstoppable and finds so much joy in sports at school and kicking the ball around with his friends. Everyday brings a new world free from pain and limitations.

Dr Saba, a leading woman in science

Worldwide, lung cancer is a leading cause of cancer mortality in both men and women and in the UAE it is ranked the second deadliest disease among UAE nationals.

Al Jalila Foundation research grant recipient, Dr Saba Al Heialy, Assistant Professor of Immunology at Mohammed Bin Rashid University of Medicine and Health Sciences, is a brilliant researcher who aims to identify genes involved in severe asthma and their correlation with the development of early lung cancer.

Interestingly, recent data from Dr Saba’s study has identified common genes, such as TLR4 and FCγRIIIB, between asthma and lung cancer which are both heterogeneous diseases of the lungs. Many studies have focused on the genetic alterations in asthma and lung cancer separately; however, there are no studies on the common genetic alterations in both lung cancer and asthma which she is exploring through her pioneering research.

Dr Saba Al Heialy was one of 15 female scientists worldwide honoured as ‘International Rising Talent’ at the 21st L’Oréal-Unesco For Women In Science Award Ceremony. The award is Dr Saba’s second L’Oréal-Unesco for Women in Science recognition; last year, she was one of only four ‘Outstanding Female Scientists’ from the GCC awarded a Middle East Fellowship.

Dr Saba’s father, an accomplished researcher, her inspiration and mentor, instilled “the core values and self confidence that have allowed me to become the researcher I am today. I hope my story will inspire many girls and young women in the Middle East to pursue their scientific dreams and reach their full potential.”

Uncovering the sleep and weight loss connection

According to the World Health Organisation (WHO), more than 4.8 million people in the UAE suffer from obesity. These numbers underscore the need for long-term funding into scientific research to develop discoveries in the field of obesity.

Al Jalila Foundation research grant recipient, Dr Teresa Arora from Zayed University, is conducting a pilot study to assess the feasibility of sleep improvement intervention for weight loss, and its maintenance in sleep impaired obese adults.

There is a well established association between sleep and obesity. However, the approach that has not yet been explored is the possibility and effectiveness of treating sleep impaired obese patients with sleep improvement to enhance weight loss and its maintenance.

The study takes obese, sleep impaired adults into two groups to receive lifestyle intervention to improve dietary and exercise habits using evidence-based psychological approaches. One group will additionally undertake a six-week training program to improve sleep targeting sleep duration, quality and timing. Should the twelve-week lifestyle intervention be feasible, secondary outcomes including weight loss and its sustainability will be assessed over six months along with other outcomes, such as mood, sleep, food intake and quality of life

Guidance leads to empowerment

Mohammed Alraidi and his wife have long been the greatest supporters of their son who was born with Down syndrome. Always on the lookout for ways to improve their son’s reality and life experiences, they came across Ta’alouf, Al Jalila Foundation’s flagship program that equips parents with the best possible tools to nurture children of determination.

Enrolling in Ta’alouf Parents Training, they eagerly absorbed the knowledge delivered in the course and began implementing it in the family’s daily life. Upon completing the program, Mohammed Alraidi received the certificate with great joy and appreciation for the invaluable knowledge.

“We are so grateful to Al Jalila Foundation and Zayed Higher Organisation for People of Determination for delivering this special educational program taught by passionate instructors to empower children of determination. We have learned so much and leave prepared with better skills to interact with, educate and empower our son. Our son shines in his own way and we hope to inspire other parents with special children to nurture these strengths.”

The Alraidi family moves forward as a positive example encouraging their son’s integration into all areas of society, championing him to participate in hobbies that spark his interest and guiding him to be confident, independent and empowered.

Knocking on the door of hope

It was the beginning of summer 2019 when 6-year-old Vinit Vasandani was devastatingly diagnosed with acute blood cancer (leukemia). The specialists at Dubai Hospital began treatment immediately. However, the family’s medical insurance had reached its annual limit by August. More funds were needed to complete Vinit’s medical plan and his father, Anil, was steadfast in his commitment to provide the best possible treatment for his son.

Undeterred by circumstance, Anil reached out to various channels for support and when the case arrived at Al Jalila Foundation’s door he found the much needed assistance to facilitate the continued treatment.

“As a parent your greatest wish is that your children are healthy and happy. We were heartbroken to learn of our son’s illness, but knowing that Vinit is supported with the greatest care is the ultimate gift for our family.”

Today, Vinit’s treatment continues with positive progress bringing him a step closer every day to a full recovery.

In addition to offering treatment to young patients, Al Jalila Foundation focuses on medical research as it is only through research that illnesses like leukemia are able to be treated successfully today.

Exploring the mysteries of disease

Dr Bashair Mussa from University of Sharjah (College of Medicine) is a cutting-edge researcher leading a study, with the support of Al Jalila Foundation seed grant, investigating the role of FOS and BECLIN1-inducing autophagy in pathogenesis of hypoglycemia-associated autonomic failure (HAAF) in diabetes.

HAAF is a serious complication of diabetes which is associated with unawareness of hypoglycemia (low levels of blood glucose) in patients with diabetes. The main cause of this condition is the absence of physiological homeostatic counter-regulatory mechanisms that are controlled by the hypothalamus (a critical region within the brain).

FOS is a sensitive marker of neuronal activity in the hypothalamus which possesses significant responses to hypoglycemia. Expression of autophagic adaptor proteins such as BECLIN 1, is associated with cognitive dysfunction in diabetes.  It has been suggested that FOS mediates the regulatory effect of BECLIN1 on autophagic processes in the brain.

This project aims to identify the role of FOS and BECLIN 1 in the pathogenesis of HAAF and to profile the involvement of autophagic markers in HAAF.

Identification of novel biomarkers for early detection of HAAF will help patients with diabetes to prevent hypoglycemic episodes, to improve their quality of life and to preserve their cognitive functions.

Walking into a new beginning

Callum was born with an abnormality of his left leg that requires an ortho-prosthesis to enable him to walk and move around independently which must be consistently refitted as he grows.

Callum’s parents have always endeavoured to do everything they can to make sure their son is completely mobile enjoying an active life like other young children.

By the age of 6, Callum had already been fitted with multiple prostheses, however, the expense began to weigh heavily on the family. Not knowing how they were going to be able to provide their son’s next artificial limb, Callum’s parents reached out to Al Jalila Foundation and to their delight, their son was able to receive the much-needed support for his growing body.

“We are forever grateful to Al Jalila Foundation for giving Callum the greatest gift and most importantly for assuring my family that we are not alone in this journey with our son. Thank you very much for making a difference to our lives!”

It is with gratitude to the support from our generous donors that Callum is able to enjoy his days running around the playground with his friends at school.

Click here to see more children whose lives have been transformed.