Category Archives: Stories of Hope

Stories

Hanah’s Gift of Hearing

When 9-month-old Hanah contracted life threatening meningitis it left her with irreversible hearing loss. Hope was close by when her parents learned that the cutting edge cochlear implant would restore her hearing. However, at a large cost the transforming solution was out of their reach. Al Jalila Foundation stepped in to fund the procedure and young Hanah, now 7-years-old, is a confident, adventurous, bright young child who excels at school and loves music. The overjoyed parents expressed: “Thank you for changing our child’s life forever. We are eternally grateful to Al Jalila Foundation for giving Hanah the greatest gift of all – the gift of hearing.”

According to the World Health Organization, 32 million children globally are affected by hearing impairment and in the Middle East, hearing loss is one of the region’s top five health problems, estimated to affect 1 in 25 people. Cochlear implants are highly effective in young children as the early stages of brain development maximises the child’s ability to develop speech, language and listening skills, ultimately transforming their life.

Hanah is one of 37 brave little warriors, sponsored by Al Jalila Foundation, who underwent a cochlear implant to restore her hearing. This innovative technology was only made possible by advancements in research and today, we are able to witness the transformative power this medical marvel has had on young lives like Hanah.

The power of hope for Palestinian boy

12-year-old Muayad Al Arjani was born with Osteogenesis Imperfecta, better known as ‘brittle bones disease’, and was unable to stand or walk without breaking bones in his legs. He was confined to a wheelchair throughout his childhood, unable to play with his friends or lead a normal life.

Due to the lack of corrective treatment in Palestine life was a struggle for Muayad who was flown to Dubai for treatment with the help of The Little Wings Foundation in partnership with Al Jalila Foundation.

Muayad underwent a complex surgery to insert telescopic steel rods into his legs and repair the repeated fractures which will allow him more independence and, hopefully one day, free him from his wheelchair.

Life was hard for Muayad’s mother Mona Al Tarabeen, raising five daughters and two brothers in war-torn Gaza so when Dr Sinclair, orthopaedic surgeon and founder of The Little Wings Foundation, confirmed they were bringing him to the UAE for treatment, the family were overjoyed.

“It was very difficult to find help in our country. I am so grateful for this life-changing gift and filled with hope that Muayad can walk like other children and be happy.”

The Little Wings Foundation provides medical assistance to children who have musculoskeletal deformities in the Middle East. The foundation is run by volunteers, and since 2018 it has been working with Al Jalila Foundation to help facilitate life-transforming treatment to vulnerable children in the region.

Read more here.

Fighting cancer with the help of friends

Roderick had always been an active healthy man when he uncharacteristically began to develop a persistent fever, sore throat and nausea that he wasn’t recovering from.

Once he checked in to Dubai Hospital in July 2019 results revealed that he was suffering from acute myeloid leukemia and was in need of life-saving treatment. The doctors began chemotherapy immediately but Roderick discovered his healthcare plan was unable to carry the cost for his entire treatment. Roderick reached out and found support he needed from Al Jalila Foundation to complete the full course of vital medical care.

After 7 months Roderick was discharged from the hospital and while his treatment continues the doctors are very happy as he shows steady progress.

“I am already gaining weight, my hair is growing back and I feel my strength returning. I know that I will win this battle as there are a lot of people supporting my journey including Al Jalila Foundation. Thank you for your kindness.”

Through A’awen, Al Jalila Foundation provides treatment support to patients in need and has to date has given hope and healing to more than 844 adults and children in the UAE suffering from chronic illness.

Mother champions inclusion in the community

Kareema, an Emirati mother, recently joined 100 parents of children with intellectual disabilities to graduate from the 19th cohort of Ta’alouf Parents Training Program, the biggest cohort to date held in Dubai. Her 18-year-old daughter, Huda, was born with physical and mental disabilities which has been a driving force behind Kareema’s commitment and passion to support people of determination.

Kareema has tirelessly supported her daughter to finish high school and encouraged her to develop her artistic drawing talents. Huda has participated in several competitions and showcased her artwork in a number of galleries and even has her own Instagram account @artist_huda_karam. Kareema includes her daughter in meetings and social gatherings which helps to lift the stigma in the community encouraging the inclusion of all people in society.

Inspired by her experience with the Ta’alouf Parents Training and as an active member in the RAK Club for People of Determination, Kareema was instrumental in assisting Al Jalila Foundation to register other parents for the cohort held in Ras Al Khaimah.

Kareema is one of 886 families across the Emirates to have graduated from the Ta’alouf program to empower children of determination to live to their full potential.

Developing solutions to support mental health

During these uncertain times, mental health support has never been more vital and Al Jalila Foundation is proud to be at the forefront of pioneering research in the UAE by supporting scientists addressing the issue.

Al Jalila Foundation research grant recipient, Professor Leontios Hadjileontiadis from Khalifa University, used cutting-edge technology to develop a first-of-its-kind mobile app to help diagnose and detect depression in users.

The innovative app called ‘Type of Mood’, available on Android and iOS, detects depressive disorders by recording four parameters related to keystroke dynamics while the user interacts with the phone’s keyboard. The data calculated is sensitive to the pressure applied on the keys and the time taken to switch between keys while typing. The app also connects to healthcare professionals and encourages those found at risk to consult with doctors for medication, if necessary.

The app is linked to the American Neurology Centre and has been operational for more than two years. Since launching, it has helped detect and record several cases of depression signaling support from professionals.

In 2019, Professor Leontios Hadjileontiadis was recognised for his ground-breaking work with the Applied Sciences Research Award as part of Dubai Healthcare City Authority’s Excellence Awards.

An inspiring role model for women in science

Dr Habiba Alsafar, a two-time Al Jalila Foundation research grant recipient, was a curious youngster who dreamed of becoming a scientist. Encouraged by her parents, she pursued her scientific aspirations gaining her PhD in Forensics and Medical Sciences and fulfilled her dream to ‘build the UAE’s capability in genetic research’.

Today, Dr Habiba is a faculty member at Khalifa University with research interests aimed at constructing Arab race genomic structures and identifying segments that carry genes predisposed to disease.

“My research is about discovering personalised preventive medicine for early detection. I am very grateful to Al Jalila Foundation for giving me the opportunity to pursue my passion and make my country proud.”

Dr Habiba was appointed to the Emirates Scientists Council in 2016 and has received numerous accolades for scientific contributions including the UAE First Pioneer Medal for Genomics Research in 2014 and the L’Oreal-Unesco For Women in Science Award in 2016.

An inspiring role model for young women, Dr Habiba is passionate about women entering the scientific field and takes pride that the majority of her students are female which is testament to the UAE’s leadership which empowers women.

Read Dr Habiba’s Story of Hope here.

Cancer patient plays football with heroes

7-year-old Mohammed suffered from headaches and vomiting for three months and after careful observation the MRI scans showed a large cystic mass in his brain and he was at risk of losing his vision. He underwent immediate surgery with success and the biopsy results revealed that it was a rare brain benign tumour (craniophyryngioma).

Unfortunately, a year later, the scans showed residual tumour and Mohammed needed continued treatment. Al Jalila Foundation stepped in to support Mohammed’s radiotherapy treatment to which he responded very well.

Though Mohammed was enduring a great deal of pain from the treatment it did not break his spirit and the brave young boy continued his studies, played with friends and practiced his various hobbies which included football.

As part of an initiative by Mediclinic City Hospital where he was receiving his treatment, Mohammed was invited to attend a special football match honouring young patients with cancer.

Mohammed’s family expressed great joy at being able to share this special day with him: “Thanks to the great care and support Mohammed has been given he had the opportunity to kick the football with some of his heroes.”

Delivering results for students of determination

Our Own English High School Fujairah took part in the 6th cohort of Al Jalila Foundation Ta’alouf Teachers Training program in partnership with Zayed University. The program trains educators to champion inclusivity within classrooms so students of determination can learn to their full potential.

Since enrolling in the program, the team implemented several new inclusion initiatives at the school across early years to grade 12. The initiatives include: putting comprehensive special needs systems in place; conducting orientation activities to highlight positive individual difference; and actively encouraging students of determination to participate in extracurricular activities.

One of the most impressive systems implemented is the Buddy System where the students ‘buddy up’ with children of determination to ensure they have a partner from school to rely on. The students make sure their buddy has someone to talk to, motivates them to complete classwork, shares notes and gives any feedback to the teacher that may be helpful.

Principal Ms Saleema Mahmoodi “Thanks to the training from Al Jalila Foundation we can ensure our school community is equipped for inclusive education even during times of distance learning. The Ta’alouf program has transformed our school and empowered people of determination.”

Adam receives life-saving kidney transplant

Adam was diagnosed with renal dysplasia after birth which led to atrophy in both kidneys and severe deficiency in renal functions. He underwent dialysis for five years at his home in Ras Al Khaimah, before his condition deteriorated. At this point, his family took him to Al Jalila Children’s Specialty Hospital where Adam received hemodialysis with up to five hours of treatment three to four times a week.

The need for a kidney transplant was evident and in July 2019 his parents’ prayers were answered, and thanks to a kidney donor young Adam underwent the successful surgical procedure. The operation was conducted in cooperation with the Mohammed Bin Rashid University for Medicine and Health Sciences (MBRU) and was supported by Al Jalila Foundation.

Adam’s father expressed “It is a dream come true and with God’s grace that Adam is here with us today. Thank you to the incredible medical team and the generosity of the foundation.”

Al Jalila Foundation is dedicated to investing in medical research as it is only through advances in medicine that patients like Adam can receive life-saving treatment. With the support of donors we are able to sponsor pioneering treatment and alleviate some of the financial burden so that patients can focus on regaining their health.

Read about Adam’s reunion with his donor’s family here.

Improving women’s health and happiness

According to World Health Organization depression affects 350 million people worldwide and is a leading cause of disability, affecting more women than men.

In the Arab world, it is estimated that 17.7 percent of the population suffers from depression. With these alarming statistics, mental health is a top priority on the UAE National Agenda and a focus for Al Jalila Foundation research.

One Al Jalila Foundation funded research project, led by Dr Wegdan Bani Issa from University of Sharjah, is an in-depth population-based study among healthy adult women living in the UAE. This research studies the relationship between stress levels, sleep quality, physical activity and dietary habits.

Mental health is related to mental and psychological well-being. It affects how we handle stress, relate to others, and make choices. Women are at great risk for increased stress levels due to hormonal differences and pressure related to engaging in multiple roles in life.

Research like Dr Wegdan’s takes us a step closer to understanding how a woman’s stress relates to her lifestyle choices and will help develop evidence-based interventions geared toward improving her mental health, happiness level and productivity.